Health Care Provider Stories

Prior to my clinical experiences with congenital cytomegalovirus (cCMV) in the workplace, I had fairly limited education regarding CMV, which, I believe, speaks loudly to the need for education of women but also healthcare professionals.

Congenital CMV is the most common viral cause of birth defects in the US, however, it is estimated that only 9-22% of women are aware of cCMV with even fewer having adequate knowledge regarding prevention.

Although there is not currently a vaccine for CMV, there are a number of ways that expectant mothers can reduce their risk of exposure – including practicing good hand hygiene and reducing contact with bodily fluids.

By educating mothers, we can empower them to make informed decisions for themselves, their baby, and their families. As both a woman and a healthcare professional, I sincerely look forward to continued progress with cCMV education, screening, prevention, and treatments.     

 - Alissa Nickerson, AUD

Over the years as a pediatric occupational therapist, I have had close contact with many children who have motor, developmental, and vision/hearing impairments because of a congenital CMV infection, and whose lives have been significantly challenged because of it. 

Cortical Vision Impairment (CVI) changes how you can take in and learn information. A child’s activities must be altered to meet their needs to best be able to experience the world around them.  In addition, many of these children also have a hearing loss which exponentially complicates how they both receive and are able to communicate with others.  Many also struggle with complex motor issues as well. 

Early screening and detection is absolutely essential so that these children can access early intervention.  I personally have seen phenomenal successes and growth with early access to skilled therapy.  

I have also seen, and continue to see, access to therapy limited by therapists who are not educated in the transmission to the CMV virus and thus have been reluctant to treat children with this diagnosis.  Education is key so this will no longer occur!

- Mimi Pruniski, OTR/L